Dear readers, “Cherish every moment you have with your loved ones, because you didn’t know, when will the time come, you just only can wish you could have it again with them”. This week’s blog post topic is not about tale stories or any legend warrior, but this topic is dedicated to my dear beautiful friend who is a warrior for me. This is about her journey in fighting severe illness. I’m sharing her story to give hope, it could give a lesson and awareness to all of you and may her journey be not just staying like that but could help others too.
“When you love someone, define it with the time you spend with them. Either you make a time or have time for them”
My time with her is defined by having a time, and not make a time. And I regretted. I just can wish for now that I am still given more chance in future to fix it back even for a short period of time.
First step journey
In 2019, she was diagnosed with Stevens-Johnson syndrome because of drug allergy in the pain killer she consumed. It’s not her first time taking it but the type of the medication may have reacted differently as she had before. The medication she takes still didn’t reduce her pain and she still keep eating it and the early symptoms starts. She was having fevers, back pain and added with sore throat. She didn’t think anything bad until second symptoms come out when her skin start shows multiple discrete red purples skin lesions on all part of her body. I repeat, all part. She quickly went to the government clinic and the doctor directly call ambulance to take her to specialist hospital. She was admitted for few weeks. Doctor told her that she’s almost late and if she comes later, it will affect her heart and can be life threatening. I can’t hold my tears, when I looked at the photo, that she sent to me. The blister and rash on her face, crusty sores on her lips. The bright and smooth skin she had were replaced with a lot of red purples moles all over her face. Blister on her lips make difficult for her to eat that time. It’s not something easier to accept especially for a woman when your face turns out like that. Even just have few pimples can make women stress and lose confident, so imagine what she had to get through when her face and her lips turn like that.
Every day she is given with 10 different kinds of medicines. It feels like as if she’s an experimental object because doctors must always test her in order to get a suitable medication for her. Due to this, she can’t take the shower product anymore. She got some body cream to start applying. The entire product must first be approved by the doctor. Her prayer for her body continued to change. Every time she took a bath, she felt ache. There was a while of irritation on her skin, bleeding skin and peeing. She has got to bear the itchy thing and she’s had the time to scratch on her hand and ankle, which makes her itchy too. The doctor has to bandage all over her palms and her ankle to ensure no infection. After few weeks, her skin shows improvements. The purples red lesion reduces and gone. But still her skin suffers serious eczema. She even feels embarrassed when I said I want to sleep over her house because of few supplications she needs to apply after bath. Despite those things, she’s still working hard on her job as usual and not let those things stop her to make a life.
The answer for the pain
After one year plus with Steven-Johnson syndrome, in 2020, she kept feeling the pain on her back and her butt. And again, she didn’t think anything negative. She just eats ‘Panadol’ to relief her pains. But then, she realises she kept losing appetite and for less than two months, she loses weight about 10kg. She always has to take Medical Leave. The worst part is when she gets fever with chills and her body were sweating at night. But she still just eats ‘Panadol’ and muscles relief. Then, in January 2021, the pain keeps increasing that sometimes the pain will stay from night till dawn. These symptoms start making her to lose focus on her job because she couldn’t sleep well, easily tired, lose weight, pale, and there had a time she has to bend a bit when walking to reduce feeling of her pains.
One day, her housemate, suddenly pat her butt and she felt so painful until stabbing pain in her stomach. She quickly goes to clinic and after scan, it shows the result that there is cyst twisted type grow near her ovaries. That night she was referred to hospital for surgery because can’t wait longer and about two cysts were removed. She feels grateful and ease because she could sleep well that night after the surgeries. Unfortunately, tomorrow at night, she gets fever with chills again and her back pain again that make the doctor gave her high dose of antibiotics and not allowed her to discharge soon. She didn’t show any improvement and the doctor suggest her to do CT scan. She couldn’t believe that time, when the result show there are tumours under her neck. The second surgery went and about 6cm tumour were removed.
Biggest test
The suffering not just end like that. The biggest suffering to fight comes when while surgery, the doctor saw more white blood comes out. She was advised to take few tests to get confirmation of the disease. On 4 February 2021 which is Cancer Days, the doctor told her that the result show she was diagnosed of Lymphoma Cancer. She felt all her world dark and stopped. She feels so down and cried harder as much as she could. Then, she knew that she couldn’t fight alone anymore because her body was very weak and no more courage to stand and walk like before. She also has to find courage, not because to get through treatment process but to be ready hear another result which is the stage of her cancer.
Two weeks before she knew the stage of her cancer and at that time, she told me on the phone she has cancer, I just couldn’t believe it’s true. My heart sank and I couldn’t focus on my job. I just want to hug her and comfort her. I cry and cry, and keep thinking all those happen to her within short period of time. I do tell her if I could get at least one day to take care of her. But I didn’t get that chance because her parents came and she had to go back to her hometown at Sarawak to continue treatment there and get close with her parents. I feel hopeless, frustrated. I really want to meet her. Pandemic makes more harder for us. I couldn’t visit her in hospital and travel far. I pray to God, at least give me something and be grateful. She gets to meet me two days before she flies back to her hometown.
I meet her on 19 February. She looks so beautiful and bright. Like have lights on her face and so different. I said to myself that I would not cry in front of her as so she would feel weaker. Then when she tells me her cancer were at stage 4 and already spread to her back and other part of her body but she will get more details once she starts treatment at her hometown hospital. I try to calm as much as I could. But my voice starts to vibrate slowly. Her cousin accompanies her because she actually couldn’t go out anywhere and have to just lay on the bed, but because of me, she tried. Touched. I hug her, and I feels her body not strong as before. I try hide my tears by hugging her bit longer. She eats with me. She smiles, make jokes and laugh like nothing happens. Try to comfort me because I know my face show it all. She actually couldn’t sit properly since her back already affects. But she tries show she enjoy eating. I saw how she try to hide her pain. I just think want to hug her and look at her as much as I could. Then I saw her palm and ankle still have effect of the Steven John syndrome. Guys, it’s terrible. Skin at her ankle hard and bit darker, redness, and lesions. Her palm so dry, wrinkle and allergies. I can’t hold my tear anymore. She hugs me and said please don’t cry, she can’t cry anymore because too much cried before. She promises me, she will fight till to recover as long as she gives a chance. I’m so proud of her. She tells me, that she must be so special and so strong than ever, that’s why she was tested like that.
Now, she still in quarantined time before can get to the hospital for the treatment process. For 6-month treatment, every day she will update the story to let other people get the awareness. Every day she said she glad and can’t believe she still alive and how she tries harder to keep fight her cancer. At first, I am scared if I will lose her so soon and there have time, I got nightmare and I texted her at 4am to ensure nothing happen to her. But now, I just want her to know that she’s not fighting this alone. Always be loved and she already done beyond than incredible things to be strong till now. Although I wish she will recover soon and can get back here to celebrate our friendship anniversary in September, but the result is still on God’s hand. I just don’t want her suffer anymore. Too much suffer she had gone through now.
To all the reader out there. Take this story as lesson and spread this awareness. Sometimes the things look simply and nothing much could give negative impact at the end. Sorry for this long story and thank you sticking till the end.
Written by Ija